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Keralam: False campaign disrupts crowdfunding drive for triplets with SMA

News RoomBy News RoomNovember 9, 2026Updated:November 9, 20269 Mins Read
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In the quiet hills of Kallurutty in Omassery panchayat, Kozhikode, a small home has become the center of a desperate, extraordinary battle. Inside, three one-year-old boys—Ethan, David, and Oliver—are fighting for their lives. They are triplets, born together, and now, together, they face a disease that threatens to steal every ordinary joy of childhood. Their parents, Arun P D and Shalmi, have spent sleepless nights watching their babies grow weaker, hoping for a miracle that medicine can offer but that the family cannot afford. The diagnosis is Spinal Muscular Atrophy, or SMA, a rare genetic neuromuscular disorder that quietly destroys the nerve cells responsible for controlling muscle movement. It is not a disease you can see at first. But slowly, children lose the ability to sit, crawl, walk, swallow, and even breathe. For these boys, the simple act of living is becoming harder each day. The medical solution exists: a one-time gene therapy called Zolgensma, given through a single intravenous infusion lasting about an hour, can change their futures. But it costs several crores of rupees. In total, the family must raise Rs 50 crore to save all three boys before they turn two. For an ordinary family from a small panchayat, that number is almost impossible to imagine. And yet, for a few bright days, it seemed possible. The community rose up. A local action committee was formed. People donated, shared, prayed, and campaigned. Contributions poured in, at times reaching Rs 1.4 crore to Rs 1.5 crore per day. Then, something terrible happened—not in the disease, but online. A wave of false messages began circulating, claiming that the family had already reached its fundraising goal. The rumor spread quickly, and with it, the donations began to dry up. Now, as the days tick by and the toddlers need the medicine more urgently than ever, the people trying to save them are facing a new enemy: misinformation.

SMA is not something a child catches, and it is not something that can be fixed with ordinary medicine. It is written into the very code of a child’s body, a genetic mutation that causes motor neurons in the spinal cord to die. These are the nerve cells that send messages from the brain to muscles, telling them to move. When those messages stop, muscles weaken, waste away, and eventually stop working entirely. For babies like Ethan, David, and Oliver, this means that the milestones most parents take for granted—rolling over, sitting up, reaching for a toy, taking a first step—may never come. More frightening, it means that the muscles used for swallowing and breathing can also be affected. SMA is relentless. It does not pause or slow down. But there is hope. Zolgensma is a revolutionary gene therapy that delivers a working copy of the gene directly to a child’s cells. It does not just manage symptoms; it goes after the root cause. One dose, lasting less time than a movie, can stop the progression of the disease and give a child the chance to grow up. The catch is the cost. The medicine is one of the most expensive in the world, and for three children, the price becomes staggering. The family’s total target of Rs 50 crore is not an exaggeration or a demand for luxury. It is the plain arithmetic of survival. The boys must receive the treatment before their second birthdays, while their bodies are still strong enough to respond. Every day of delay means more muscle loss, more permanent damage, less hope. That is why the fundraising campaign is not just about money. It is about time. It is about racing against a disease that never sleeps and against a clock that will not stop.

When the campaign began, the response was overwhelming in the most beautiful way. People from every corner of Kozhikode and beyond opened their hearts. The local action committee organized rallies, door-to-door campaigns, online drives, and events. Donations came from rich and poor, young and old, from schoolchildren emptying their piggy banks to grandparents sending whatever they had saved. In the early days of the twenty-day drive, the daily contributions were staggering—sometimes reaching Rs 1.4 crore to Rs 1.5 crore in a single day. It felt like the world was paying attention, like compassion had become a movement. Volunteers worked tirelessly, holding banners, sharing posts, and speaking to anyone who would listen. The triplets’ faces appeared everywhere, their tiny smiles becoming a symbol of hope. Families who had never met Arun and Shalmi felt connected to them. People imagined what it would be like to be in that position, to have three sick children and nowhere to turn, and they responded with whatever they could offer. The total collection began to rise: one crore, five crore, ten crore, until it reached approximately Rs 16.5 crore. That is a huge amount of money, and it stands as a testament to human generosity. But it is only about a third of what is needed. The family still requires roughly Rs 33.5 crore to purchase the medication for all three boys. That gap is not just numbers on a screen. It is the difference between life and death for three little boys who have done nothing to deserve this suffering.

Then the lies started. Somewhere, on social media, a rumor began to circulate. The message claimed that the triplets’ fund had already reached its goal. It said the money was no longer needed, that people should stop donating, that the family was already saved. Perhaps the rumor began as a misunderstanding. Perhaps it was deliberate. But regardless of where it came from, it has had a devastating effect. The messages spread faster than the truth, jumping from group to group, from platform to platform. People who had been planning to donate suddenly stopped. Some called the family and the committee to check whether the news was true. Others simply believed it and moved on, thinking their money was not needed. Members of the local action committee, led by people like Albin Sebastian, found themselves in the strange and painful position of having to convince the public that the boys were still in terrible danger. Albin Sebastian described how team members going to various places for campaigning were met with the same disappointing statement: people were telling volunteers that the fund was already fully achieved. The rumor had quietly closed thousands of hearts. The daily donations plummeted. Where once the campaign was collecting Rs 1.4 crore to Rs 1.5 crore a day, it now struggles to gather just Rs 20 lakh to Rs 30 lakh daily. That is a five-fold drop, and the consequences are not abstract. Every day with reduced donations means the family falls further behind, and the boys move closer to the age when the treatment will no longer be possible. Misinformation is not a harmless online nuisance here. It is a life-threatening obstacle.

The truth is simple and urgent: the goal has not been reached. The total collected so far stands at approximately Rs 16.5 crore, which is a remarkable achievement but still leaves a mountain of Rs 33.5 crore to climb. The committee is doing everything it can to correct the record. They are pleading with the public to verify information before sharing it, to trust official announcements rather than random messages, and to understand that the campaign will not end until the medicine is in the boys’ veins. Albin Sebastian and other volunteers are personally responding to calls, reassuring donors, and continuing their honest, exhausting ground campaign. They are trying to rebuild the momentum that was shattered by falsehoods. But they cannot do it alone. The same technology that allowed the rumor to spread can also spread the truth. Every person who reads this can become a voice for Ethan, David, and Oliver. Every share of a verified update, every conversation with a friend who might have been misled, every fresh donation—no matter how small—helps fight back against the lie that says these children no longer need us. The committee knows that Rs 50 crore is an enormous sum. They know that asking ordinary people to contribute is not easy. But they also know that the alternative is unthinkable: watching three boys slip away because a false rumor convinced the world that their suffering was over when it had only just begun.

This is the moment to choose what kind of people we are. We live in an age where misinformation moves at lightning speed, where a thoughtless forward can undo weeks of sacrifice. But we also live in an age where compassion can move mountains, where thousands of small hands together can lift a burden that one family could never carry. Arun and Shalmi are not asking for pity. They are asking for a chance—three chances, actually, three tiny boys named Ethan, David, and Oliver who deserve to grow up, to laugh, to argue over toys, to learn the alphabet, to become whoever they are meant to be. The disease has already taken so much from them, but it has not taken everything. The treatment exists. The time is now. The only thing missing is the money, and the only thing preventing that money from arriving is a lie. We cannot let a lie be stronger than our love. We cannot let the boys’ futures be stolen by a fake message on someone’s phone. Let us make sure that the only thing that spreads faster than misinformation is mercy. Let us reach into our wallets, but more importantly, let us reach into our hearts. Let us call a friend, post a verified link, ask our neighbors, and tell the world the truth: the fund has not been reached, the fight is not over, and three one-year-old boys still need a miracle. Together, we can give them one. We can make the numbers add up. We can turn a story of heartbreak into a story of survival. All it takes is holding on to hope a little longer, and refusing to believe that the battle is already won when these beautiful children are still waiting for their cure.

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